| JOSH
5-year-old
Joshua is one of three children in a Minnesota family. He uses a power
wheelchair to move himself around at school and is working hard to learn
to walk, presently walking while fully supported in a gait trainer.
He needed a piece of equipment for play and for gym class at school,
so his family requested Variety’s help purchasing a specially
adaptive bicycle. The bike would not only meet his recreational needs,
but also his need for exercise, increasing his leg strength and allowing
practice of reciprocal leg movements to improve gait. Variety approved
the request and Joshua now owns his very own bicycle specially customized
for his needs, allowing him to ride without help and maximize his potential
to walk independently.
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| NAFISSA
3-year-old
Nafissa’s primary means of mobility was a wheelchair that had
to be pushed by a caregiver. At 43 inches long and 54 pounds, she was
becoming too heavy for her mother to constantly transfer her in and
out of the wheelchair. The equipment itself was also cumbersome because
of its weight and the process of disassembling, transporting and then
reassembling the wheelchair. In order to make everyday errands and outings
throughout their hometown in North Carolina more comfortable for Nafissa
and easier for her mother, Variety provided the funds to purchase the
family a special stroller. Her mother says, “It is so much lighter
and easier to transport than her wheelchair, and it has made it much
easier to take Nafissa out on short trips and errands.” Thanks
to her new stroller, Nafissa’s horizons have expanded as she goes
out to more places and is exposed to environments outside her home and
school more often.
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| ABBY
9-year-old
Abby is Variety’s first mobility recipient in Arizona. She is
part of a family of six, with one more on the way. She attends physical
therapy, and while she was there in the fall, she had the opportunity
to ride a specially adaptive bike. Her therapist saw that the bike improved
her leg strength and endurance and recommended the family purchase a
bike for Abby. Supporting a family of six can be a monumental task,
and paying for a child’s therapy often means families incur many
out of pocket expenses that insurance just will not cover. That’s
where Variety stepped in by funding a custom-outfitted bicycle for Abby.
The bicycle is an excellent addition to Abby’s home therapy regimen.
It will improve her strength, range of motion and endurance. It will
also enhance her sense of independence and improve her social interaction
as she joins her sisters on their bike rides around the neighborhood.
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| VANESSA
8-year-old
Arizona resident Vanessa requires maximum assistance from two people
when walking, but the new gait trainer purchased for her by Variety
allows her to walk with much better results. The gait trainer provides
necessary support and can serve as a means of mobility at home and at
school. It also provides positioning in standing for her; standing is
very important to prevent bone loss, respiratory infections, skin breakdown
and other complications. "This is a wonderful gift. Not only will
it help Vanessa's physical health, it will give her the opportunity
to be more active and involved. That's extremely important to an eight-year-old," says
Karen Curtis, Vanessa's pediatric physical therapist.
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| ALYSSA
9-year-old
Alyssa is the first Variety: Delaware Division child to be assisted
through Direct Care for Kids, a last resort medical program for families
in need that supplies necessary medical equipment to children whose
insurance companies cannot provide coverage. Alyssa has cerebral palsy
and her family had been seeking approval from insurance for an adapted
bicycle for two years to no avail. This bike will serve as a means of
physical therapy for her by allowing her to strengthen muscles. In addition,
it allows her to partake in a recreational activity with her friends
and siblings. This is Alyssa’s first bicycle!
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| MATTHEW
Matthew
is a very outgoing and energetic 12-year-old from Ohio who loves adapted
recreation. He learned how to independently pedal and steer a specially-adapted
bike while at therapy to treat his spastic quadriplegia cerebral palsy.
Despite the bike’s benefits to improve his joint range of motion,
strength, balance and coordination, the family was unable to get the
bike for their son because of the expenses incurred due to having a
child with disabilities. Variety stepped in to provide the bicycle for
Matthew just in time for the holidays. His mother writes, “How
can we begin to thank you enough for your kind gift to Matthew? He looks
forward to FINALLY being able to participate in the annual ‘Pedal
with Pete’ fundraiser for kids with cerebral palsy. He’s
never participated because he’s never had a bike…until
now! Thanks for making Matthew’s dreams come true!"
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| MIKAYLA
Mikayla
has the same sense of adventure as other 9-year-olds, enjoying walks,
trips to the park, hikes with her family, the beach, and many other
outdoor activities in her hometown of Seattle. But her rare chromosome
deletion means she has very low muscle tone and is easily fatigued,
making it difficult for her to participate in family activities. Her
mother began researching special needs strollers but found the cost
overwhelming for her family of seven, especially with her husband out
of work due to a severe injury. After being denied aid from her and
her husband’s insurance companies and two state agencies, Jodi
found out about Variety through her local Starlight Starbright office.
She applied for a stroller and was approved two weeks later. ‘The
look on Mikayla’s face when we pulled the stroller out of the
box was beyond description,’ her mother says. “There are
not enough words to describe her excitement. She was grinning from ear
to ear.”
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| AMARE
2-year-old
Amare lives with his mother and 7-year-old brother in North Carolina.
Due to his cerebral palsy and other medical issues, Amare was unable
to walk independently before Variety provided a posture-control walker,
pelvic stabilizer and extensor assist pad for him. The equipment helps
him walk independently by improving alignment and symmetry and providing
additional hip extensor assistance. Amare’s mother expressed her
gratitude: “Thank you so much for the walker, stabilizer and pad.
Amare is making a lot of improvements.”
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| LATOYA
The
devastation caused by Hurricane Katrina in New Orleans was immense for
the city’s residents, and even more so for families like 11-year-old
LaToya and her mother. LaToya, who was just 9 years old at the time,
suffers from cerebral palsy with significant stiffness throughout her
body. She and her mother were forced to relocate to nearby Baton Rouge
because of the hurricane. During therapy sessions, LaToya had the opportunity
to try a specially-adapted bike. She was extremely excited and became
more active and verbal while practicing pedaling the bike. Upon hearing
about LaToya and how riding a bike would help improve her range of movement,
increase lower limb strength and encourage general exercise and social
activity, Variety stepped in to fund a specially-adapted bike of her
very own. After just a couple of months, LaToya’s therapist already
sees the benefits of LaToya regularly riding her bike.
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| JAREK
At
just 12 years old, Jarek has developed an outlook on life and a level
of wisdom that reach well beyond his pre-teen years. Jarek believes
in opening the door when opportunity knocks and he tries to extract
fun out of every experience. Most importantly, he does not allow cerebral
palsy to run his life. That attitude has garnered the happy, enthusiastic
Minnesota resident a very active life – he won a contest that
landed his artwork on the official 2006 greeting card for the Parent
Advocacy Coalition for Educational Rights Center, he participates in
sports like water-skiing, wheelchair ice hockey, and basketball, and
he has met celebrities like Bo Derek and Michael Bolton. However, despite
all of his accomplishments, Jarek was unable to do something as simple
as reaching an object in a cupboard. Variety heard about this inspirational
boy and his need for a custom power-pack to elevate himself in his wheelchair,
and we stepped in to provide him with the equipment. Jarek is one step
closer to living as fully and independently as possible.
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| EMILIO
Variety
of Colorado launched its mobility program by presenting two well-deserving
boys with bikes to meet their special needs. 7-year-old Emilio
Herrera has Methylmalonic Acidemia (a metabolic disorder) and received
an adapted bike. His parents, Roberta and Albert, were overwhelmed
with emotion to see Emilio on a bike of his own. Following the
presentation at UA Meadows 12 Theatres in Lone Tree, CO, each of the
recipients and their families were treated to a movie courtesy of Regal
Entertainment. Variety of Colorado thanks the Anschutz Foundation
for its generous donation that funded the equipment for Emilio and Candido
(below).
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| CANDIDO
Variety
of Colorado launched its mobility program by presenting two well-deserving
boys with bikes to meet their special needs. 11-year-old Candido
Estrada, who has Spina Bifida, received a handcycle. Once Candido
got the hang of his new bike, no one could slow him down. Following
the presentation at UA Meadows 12 Theatres in Lone Tree, CO, each of
the recipients and their families were treated to a movie courtesy of
Regal Entertainment. Variety of Colorado thanks the Anschutz Foundation
for its generous donation that funded the equipment for Emilio (above)
and Candido.
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| LOGAN
Logan,
who was born three months premature, has cerebral palsy. The 4-year-old
cannot communicate, nor can he walk, sit up, or crawl. At an age when
most children chase one another around the preschool yard, he can only
roll over. His mother, Kristy, struggled to take him places because
his wheelchair was too heavy for her to lift into their vehicle.
Within one week of requesting a lightweight wheelchair
from Variety, Kristy received a call that her request had been approved.
Logan became Variety of Eastern Tennessee’s first mobility recipient.
Now, Logan can go anywhere at any time. Weighing just 10 pounds, his
new chair is easy to lift into their van and simple to fold for storage.
“I never hesitate to go anywhere now,” Kristy says.
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| MOLLY
Variety
of Georgia officially launched its Mobility Program with the presentation
of a specially outfitted bike to a little girl named Molly. Here are
some comments from Molly's mother, Andrea:
"It is hard to put into words what Molly's new bike
means to her. First of all, it is great for her physically. Molly has
cerebral palsy and it is helping her with her strength as well as stretching
her tight heel chords. Secondly, the bike is helping Molly socially.
She is more aware of her environment when on the bike (rather than a
stroller or wheelchair). Other people also come up to her to talk about
her cool new bike. Most importantly, the bike is helping Molly be a part
of her family. Molly is a triplet and now she can ride her bike just
like her brother and sister. In fact, they are jealous and love to have
a turn on her bike! Thank you so much for making a difference in all
our lives!"
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| ABIGAIL AND EMILY
Winter
Springs Elementary School in Florida is the only public elementary school
endorsed by Seminole County for the instruction of physically and mentally
impaired children. The school’s administration was unable to get grants
or county funds to install a handicap door at the entrance of their
building, thus limiting the mobility of their physically impaired students,
like Abigail and Emily. These otherwise capable children could not run
errands for their teachers or move freely through the school like other
children because they could not maneuver their wheelchairs as needed
or pull open a forty-pound door on their own.
Abigail and Emily either had to have their parents
open the door, wait for a teacher to come and let them in, or hope that
another child would be around to assist them. Now, thanks to the generosity
of mobility program sponsor Fred Astaire Dance Studios, they can say
goodbye to their parents at the curb, volunteer to deliver papers to
the front office for their teachers and go about their day the same as
the other children who attend Winter Springs Elementary School.
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